\u0130zmir\u2019in Karaba\u011flar il\u00e7esinde ya\u015fayan Evin \u00d6nder ve Mehmet \u00d6nder \u00e7iftinin 4,5 ayl\u0131k k\u0131z\u0131 G\u00fcl Sima\u2019ya, hen\u00fcz 17 g\u00fcnl\u00fckken topuktan al\u0131nan kanla SMA Tip 1 te\u015fhisi konuldu. Hamileli\u011fi s\u00fcresince hi\u00e7bir s\u0131k\u0131nt\u0131 ya\u015famad\u0131\u011f\u0131n\u0131 anlatan Evin \u00d6nder, G\u00fcl Sima\u2019n\u0131n hastal\u0131\u011f\u0131n\u0131 \u00f6\u011frendiklerinde b\u00fcy\u00fck bir \u015fa\u015fk\u0131nl\u0131k ya\u015fad\u0131\u011f\u0131n\u0131 ifade etti.<\/p>\n
O g\u00fcnden beri m\u00fccadelelerinin s\u00fcrd\u00fc\u011f\u00fcn\u00fc anlatan \u00d6nder, \u201cK\u0131z\u0131m\u0131z beslendi\u011fi s\u0131rada yutkunurken biraz zorlan\u0131yor. Boynunu tutarken yorulmaya ba\u015flad\u0131. Kabullenmek istemesek de hastal\u0131k kendisini yava\u015f yava\u015f g\u00f6steriyor. Zaman\u0131m\u0131z \u00e7ok dar, bunun fark\u0131nday\u0131z 4,5 ayl\u0131k olmas\u0131na ra\u011fmen kampanyam\u0131z y\u00fczde 1\u2019in bile alt\u0131nda. Kas kayb\u0131 ya\u015famadan tedaviye ula\u015fmak istiyoruz. Zaman\u0131 durdurmak isterdik ama maalesef elimizden hi\u00e7bir \u015fey gelmiyor. \u0130n\u015fallah kas kayb\u0131 ya\u015famadan gerekli miktar\u0131 toplayabiliriz\u201d ifadelerini kulland\u0131.<\/p>\n
\u2018R\u00dcYALARIMA G\u0130R\u0130YOR\u2019<\/strong><\/p>\n Her g\u00fcn i\u00e7indeki korkunun artt\u0131\u011f\u0131n\u0131 s\u00f6yleyen Evin \u00d6nder, geceleri bebe\u011finin rahat nefes al\u0131p almad\u0131\u011f\u0131n\u0131 kontrol etmenin kendisine b\u00fcy\u00fck \u00fcz\u00fcnt\u00fc verdi\u011fini belirterek, \u201cHer sabah kalkt\u0131\u011f\u0131mda ya yeni bir semptom ile kar\u015f\u0131la\u015f\u0131rsam, diye korkuyorum. R\u00fcyalar\u0131ma bile giriyor, s\u00fcrekli k\u0131z\u0131m\u0131n hastal\u0131\u011f\u0131 ile m\u00fccadele ediyorum. Bu hastal\u0131\u011f\u0131 \u00f6\u011frendi\u011fim andan itibaren lohusal\u0131k d\u00f6nemim de k\u00f6t\u00fc ge\u00e7ti. Anne olman\u0131n keyfini alamad\u0131m.<\/p>\n Evlad\u0131m\u0131 kuca\u011f\u0131ma ald\u0131ktan 2 hafta sonra bu sava\u015fa girmek bana anne olman\u0131n mutlulu\u011funu ya\u015fatmad\u0131. \u00c7ok zor g\u00fcnler ge\u00e7irdim. O kadar kan verdik ama bu hastal\u0131\u011fa bak\u0131lmad\u0131. Hep kendimi de su\u00e7lad\u0131m. Neden test yapt\u0131rmad\u0131\u011f\u0131m\u0131z\u0131 bilmiyorum. Ama \u00e7are yok. \u015eu an tek temennimiz bundan sonra tedavimiz gecikmesin\u201d dedi.<\/p>\n \u2018TEST YAPTIRMAK AKLIMIZA GELMED\u0130\u2019<\/strong><\/p>\n Meyve sebze halinde yevmiyeli olarak hamall\u0131k yaparken k\u0131z\u0131n\u0131n hastal\u0131\u011f\u0131 nedeniyle i\u015fini de b\u0131rakmak zorunda kald\u0131\u011f\u0131n\u0131 belirten Mehmet \u00d6nder (27) ise k\u0131z\u0131n\u0131n tedavisi i\u00e7in gerekli paray\u0131 toplamak i\u00e7in m\u00fccadele etti\u011fini dile getirdi. Valilik izinli ba\u011f\u0131\u015f kampanyas\u0131n\u0131n bir hafta \u00f6nce a\u00e7\u0131ld\u0131\u011f\u0131n\u0131 belirten \u00d6nder, \u201cBen meyve sebze halinde \u00e7al\u0131\u015f\u0131yordum ama k\u0131z\u0131m i\u00e7in i\u015ften ayr\u0131lmak zorunda kald\u0131m. Etrafa ko\u015fturuyorum, k\u0131z\u0131m i\u00e7in dilencilik yap\u0131yorum.<\/p>\n Anne baba olmadan \u00f6nce ta\u015f\u0131y\u0131c\u0131 olup olmad\u0131\u011f\u0131m\u0131zla ilgili bir test yapt\u0131rmak akl\u0131m\u0131za gelmedi. Kim evlad\u0131n\u0131n b\u00f6yle olmas\u0131n\u0131 ister? Testle ilgili bilgimiz yoktu. Ke\u015fke o testi yapt\u0131rsayd\u0131k. Sesimizi duyuramad\u0131\u011f\u0131m\u0131z i\u00e7in kampanyam\u0131z \u00e7ok yava\u015f ilerliyor. G\u00fcl Sima\u2019ya nefes olun. Bebe\u011fimiz sa\u011fl\u0131\u011f\u0131na kavu\u015fsun\u201d diye konu\u015ftu.<\/p>\n \u2018TORUNUMA BAKTIK\u00c7A \u0130\u00c7\u0130M PAR\u00c7ALANIYOR\u2019<\/strong><\/p>\n Torunun tedavisi i\u00e7in destek isteyen Azize \u00d6nder de \u015funlar\u0131 s\u00f6yledi:<\/p>\n \u201cAmcam\u0131n torunu 3 ya\u015f\u0131nda. Ona da bu te\u015fhis konmu\u015ftu. Nikah g\u00fcn\u00fc al\u0131rken kan vermi\u015flerdi ben de test yap\u0131ld\u0131 sand\u0131m. Torunuma bakt\u0131k\u00e7a i\u00e7im par\u00e7alan\u0131yor. \u0130nsan\u0131n elinden hi\u00e7bir \u015fey gelmiyor. Elimiz kolumuz ba\u011fl\u0131. Devletimizden yard\u0131m istiyoruz. Bir an \u00f6nce SMA hastalar\u0131na el uzat\u0131ls\u0131n.\u201d(DHA)<\/p>\n","protected":false},"excerpt":{"rendered":" \u0130zmir’de, 4,5 ay \u00f6nce do\u011fan k\u0131z\u0131 G\u00fcl Simay’a SMA (Spinal Musk\u00fcler Atrofi) Tip 1 te\u015fhisi konulan Evin \u00d6nder, (26) ta\u015f\u0131y\u0131c\u0131s\u0131 olduklar\u0131n\u0131 bilmeden anne baba olduklar\u0131n\u0131 s\u00f6yledi. \u00d6nder, “Kan vermi\u015ftik ama bu hastal\u0131\u011fa bak\u0131lmad\u0131. Hep kendimi de su\u00e7lad\u0131m. Neden test yapt\u0131rmad\u0131\u011f\u0131m\u0131z\u0131 bilmiyorum. Ama \u00e7are yok. \u015eu an tek temennimiz bundan sonra tedavimiz gecikmesin” dedi.<\/p>\n","protected":false},"author":1,"featured_media":121748,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[82,482,5662,985],"class_list":["post-121747","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","tag-gun","tag-kizi","tag-onder","tag-test"],"_links":{"self":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/121747","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=121747"}],"version-history":[{"count":1,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/121747\/revisions"}],"predecessor-version":[{"id":121749,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/121747\/revisions\/121749"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/media\/121748"}],"wp:attachment":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=121747"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=121747"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=121747"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}