{"id":19015,"date":"2022-08-08T13:05:05","date_gmt":"2022-08-08T13:05:05","guid":{"rendered":"https:\/\/haberulus.net\/?p=19015"},"modified":"2022-08-08T13:05:05","modified_gmt":"2022-08-08T13:05:05","slug":"sma-hastasi-eda-icin-1-8-milyon-dolar-toplandi","status":"publish","type":"post","link":"https:\/\/haberulus.net\/?p=19015","title":{"rendered":"SMA hastas\u0131 Eda i\u00e7in 1.8 milyon dolar topland\u0131"},"content":{"rendered":"

Bursa’da SMA tip-1 hastas\u0131 4 ya\u015f\u0131ndaki Eda’n\u0131n tedavisi i\u00e7in gerekli olan 1 milyon 800 bin dolar topland\u0131. K\u0131z\u0131n\u0131n tedavisinin ard\u0131ndan iyi haberlerini payla\u015fmak istedi\u011fini belirten anne Hatice Baytekin, “Destek veren herkese te\u015fekk\u00fcr ediyorum. D\u00f6rt sene boyunca \u00e7ok a\u011flad\u0131k. Herkesten Allah raz\u0131 olsun” dedi.\u00a0<\/b><\/p>\n

\u0130neg\u00f6l il\u00e7esinde ya\u015fayan anne Hatice Baytekin\u2019in d\u00f6rt y\u0131l \u00f6nce d\u00fcnyaya getirdi\u011fi k\u0131z\u0131 Eda\u2019n\u0131n do\u011fumundan sonra fiziksel hareketlerinde h\u0131zl\u0131 bir yava\u015flama g\u00f6r\u00fcld\u00fc. Ayaklar\u0131n\u0131 hareket ettiremeyen ve emekleyemeyen minik Eda, ailesi taraf\u0131ndan hastaneye g\u00f6t\u00fcr\u00fcld\u00fc.<\/p>\n

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Eda\u2019ya, \u2018gev\u015fek bebek sendromu\u2019 olarak bilinen \u2018spinal musk\u00fcler atrofi (SMA) tip 1\u2019 hastal\u0131\u011f\u0131 te\u015fhisi konuldu. Aile yapt\u0131\u011f\u0131 ara\u015ft\u0131rmada, Eda\u2019n\u0131n, Macaristan\u2019da uygulanan ve y\u00fczde 95 ba\u015far\u0131 oran\u0131 sa\u011flayan tedaviyle iyile\u015febilece\u011fini \u00f6\u011frendi. Baytekin ailesi, 1milyon 800 bin dolarl\u0131k tedavi masraflar\u0131 i\u00e7in valilik izni ile yard\u0131m kampanyas\u0131 ba\u015flatt\u0131.<\/p>\n

KAMPANYA 640 G\u00dcNDE TAMAMLANDI<\/strong><\/p>\n

\u0130neg\u00f6l il\u00e7esi ba\u015fta olmak \u00fczere \u00e7\u0131\u011f gibi T\u00fcrkiye\u2019ye yay\u0131lan yard\u0131m kampanyas\u0131na binlerce vatanda\u015f destek verdi. Anne Hatice Baytekin ve Eda\u2019n\u0131n g\u00f6n\u00fcll\u00fc anneleri taraf\u0131ndan sosyal medya \u00fczerinden 640 g\u00fcnd\u00fcr s\u00fcrd\u00fcr\u00fclen kampanya, ak\u015fam saatlerinde Eda\u2019n\u0131n tedavisi i\u00e7in gereken 1 milyon 800 bin dolar\u0131n toplanmas\u0131 ile sona erdi.<\/p>\n

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Kampanyan\u0131n tamamland\u0131\u011f\u0131n\u0131 \u00f6\u011frenen Eda\u2019n\u0131n ailesi ve sevenleri il\u00e7e merkezinde toplanarak kutlama yapt\u0131. \u0130l\u00e7e merkezinde ara\u00e7larla konvoy yapan grup daha sonra sokakta halay \u00e7ekip, ba\u015far\u0131y\u0131 kutlad\u0131lar.<\/p>\n

\"\"<\/p>\n

Hatice Baytekin, \u201cK\u0131z\u0131m \u00f6l\u00fcmc\u00fcl bir kas hastal\u0131\u011f\u0131 ile m\u00fccadele ediyordu. Bize destek veren herkese te\u015fekk\u00fcr ediyorum. \u00dcmidim k\u0131z\u0131m\u0131n sa\u011fl\u0131kl\u0131 hallerini sizlerle en k\u0131sa zamanda payla\u015fmak istiyorum. 4 sene boyunca \u00e7ok a\u011flad\u0131k. Herkesten Allah raz\u0131 olsun\u201d dedi. (DHA)<\/p>\n","protected":false},"excerpt":{"rendered":"

Bursa’da SMA tip-1 hastas\u0131 4 ya\u015f\u0131ndaki Eda’n\u0131n tedavisi i\u00e7in gerekli olan 1 milyon 800 bin dolar topland\u0131. K\u0131z\u0131n\u0131n tedavisinin ard\u0131ndan iyi …<\/p>\n","protected":false},"author":1,"featured_media":19016,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[1788,376],"class_list":["post-19015","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","tag-kampanya","tag-tedavi"],"_links":{"self":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/19015","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=19015"}],"version-history":[{"count":1,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/19015\/revisions"}],"predecessor-version":[{"id":19017,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/19015\/revisions\/19017"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/media\/19016"}],"wp:attachment":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=19015"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=19015"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=19015"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}