{"id":74368,"date":"2023-03-03T08:37:04","date_gmt":"2023-03-03T08:37:04","guid":{"rendered":"https:\/\/haberulus.net\/?p=74368"},"modified":"2023-03-03T08:37:04","modified_gmt":"2023-03-03T08:37:04","slug":"damla-hemsirenin-sagligina-kavusmasi-icin-o-ilaca-ihtiyaci-var","status":"publish","type":"post","link":"https:\/\/haberulus.net\/?p=74368","title":{"rendered":"Damla hem\u015firenin sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131 i\u00e7in o ilaca ihtiyac\u0131 var"},"content":{"rendered":"

Sakarya E\u011fitim ve Ara\u015ft\u0131rma Hastanesi\u2019nde g\u00f6revli hem\u015fire Damla Badur\u2019un beyninde olu\u015fan t\u00fcm\u00f6r 2019 y\u0131l\u0131nda ameliyatla al\u0131nd\u0131. T\u00fcm\u00f6rde yap\u0131lan tahlillerde Baduru\u2019n genetik sa\u011fl\u0131k problemine sahip olabilece\u011fi ihtimali \u00fczerinde duruldu. Badur g\u00fcnl\u00fck ya\u015fam\u0131na devam etti\u011fi s\u0131rada 2020\u2019de \u015fiddetli kar\u0131n a\u011fr\u0131s\u0131yla hastaneye ba\u015fvurdu. Ultrason \u00e7ekiminde pankreas\u0131nda bulunan kitleler incelenmeye ba\u015fland\u0131. Damla Badur\u2019a 60 binde 1 g\u00f6r\u00fclen, v\u00fccudun bir\u00e7ok yerinde kist ve t\u00fcm\u00f6r yapan VHL sendromu te\u015fhisi koyuldu. Hastal\u0131\u011f\u0131n tedavisi i\u00e7in hem\u015fire Badur\u2019un 116 bin euro de\u011ferindeki \u2018Welireg\u2019 isimli ilac\u0131 kullanmas\u0131 gerekiyor.<\/p>\n

\u201cBU \u0130LACA \u0130HT\u0130YACIM VAR\u201d<\/strong><\/p>\n

\u0130mkanlar\u0131n\u0131n ilac\u0131 kar\u015f\u0131lamaya yeterli olmad\u0131\u011f\u0131n\u0131 dile getiren Damla Badur, e\u015fi Serhat Badur ile\u00a0 ilac\u0131n yurt d\u0131\u015f\u0131ndan sat\u0131n al\u0131nmas\u0131 i\u00e7in valilik onay\u0131yla kampanya ba\u015flatt\u0131. Bu s\u00fcre\u00e7te herkesin deste\u011fine ihtiyac\u0131 oldu\u011funu belirten Badur, \u201cBu hastal\u0131k genetik bir hastal\u0131k, aileden gelen bir hastal\u0131k ancak bazen ki\u015finin kendisinde de mutasyon ba\u015flayabiliyor. Benim bu \u015fekilde oldu. Aile bireylerimin hi\u00e7birinde bu hastal\u0131k yok, bende var. Bu hastal\u0131\u011f\u0131n 2021 y\u0131l\u0131na kadar bulunmu\u015f bir tedavisi yoktu. 2021 y\u0131l\u0131nda Amerika\u2019da geli\u015ftirilen bir ilac\u0131 var ve benim bu ilaca ihtiyac\u0131m var. Hastal\u0131\u011f\u0131m\u0131n bende olumsuz etkileri \u00e7ok fazla oldu. En fazla etki pankreas\u0131mda. Pankreas\u0131m\u0131n i\u00e7i kist dolu, en b\u00fcy\u00fc\u011f\u00fc 5-6 santim civar\u0131nda ve bana ciddi anlamda a\u011fr\u0131l\u0131 bir hayat sunuyor bu hastal\u0131k. Zor zamanlar ge\u00e7iriyorum\u201d dedi.<\/p>\n

\"\"<\/p>\n

\u201cORGAN KAYIPLARI YA\u015eAMAK \u0130STEM\u0130YORUM\u201d<\/strong><\/p>\n

\u0130la\u00e7 tedavisinin olmamas\u0131 durumunda ameliyatta \u00e7oklu organ kayb\u0131 ya\u015fayaca\u011f\u0131n\u0131 anlatan Badur, \u201cHastal\u0131k tan\u0131s\u0131 koyuldu\u011fundan bug\u00fcne kadar 3 y\u0131l ge\u00e7ti ve bu s\u00fcre\u00e7te pankreas\u0131m\u0131n durumu iyice k\u00f6t\u00fcle\u015fti. \u015eu an pankreas\u0131m\u0131n durumunun kanserden bir ad\u0131m \u00f6nce oldu\u011fu s\u00f6yleniyor doktorlar taraf\u0131ndan. Ameliyat \u00f6nerdiler ilk ba\u015fta ve bu ameliyatta pankreas\u0131mla birlikte dalak, safra kesesi gibi \u00e7oklu organ \u00e7\u0131kar\u0131mlar\u0131 yap\u0131yorlarm\u0131\u015f. Bu kadar organ kayb\u0131 ya\u015famak istemiyorum, hastal\u0131\u011f\u0131n tedavisi varken. \u0130yile\u015febilecek duruma gelebilecekken ilac\u0131m\u0131n tedavisini istiyorum. Bunun i\u00e7in yard\u0131m kampanyas\u0131 ba\u015flatt\u0131k, herkesin deste\u011fini bekliyoruz\u201d dedi.<\/p>\n

\u201cL\u00dcTFEN BEN\u0130 YALNIZ BIRAKMAYIN\u201d<\/strong><\/p>\n

Meslekta\u015f\u0131 e\u015fi Serhat Badur\u2019un kendisine yard\u0131mc\u0131 oldu\u011funu dile getiren Badur, \u201cG\u00fcnl\u00fck ya\u015fam aktivitelerimi yaparken \u00e7ok zorlan\u0131yorum. E\u011filip, kalkmaktan tutun, ayakkab\u0131 ba\u011fc\u0131\u011f\u0131n\u0131 ba\u011flamakta bile \u00e7o\u011fu zaman e\u015fimden yard\u0131m al\u0131yorum. \u00c7ok ciddi a\u011fr\u0131lar\u0131m oluyor. Bu, beni zorluyor. Bu ilac\u0131n bana iyi gelece\u011fi, doktorlar taraf\u0131ndan re\u00e7ete edildi. Herkesin deste\u011fine ihtiyac\u0131m var, bu ilac\u0131 kar\u015f\u0131layacak maddi durumum yok. \u0130lac\u0131n yurt d\u0131\u015f\u0131n\u0131n geli\u015f maliyeti 2,3 milyon lira civar\u0131nda. Bu miktar\u0131n toplanmas\u0131 i\u00e7in deste\u011finize ihtiyac\u0131m var. L\u00fctfen, beni bu konuda yaln\u0131z b\u0131rakmay\u0131z. Ben bu \u00fclkenin hem\u015firesiyim, mesle\u011fimi en iyi \u015fekilde yap\u0131p, hem devletime hem milletime faydal\u0131 olmak istiyorum\u201d ifadelerini kulland\u0131. (DHA)<\/p>\n","protected":false},"excerpt":{"rendered":"

Hem\u015fire Damla Badura’ya v\u00fccudun bir\u00e7ok yerinde kist ve t\u00fcm\u00f6r yapan VHL sendromu te\u015fhisi koyulurken, sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131 i\u00e7in gereken 116 bin euro de\u011ferindeki ilac\u0131n yurt d\u0131\u015f\u0131ndan al\u0131nmas\u0131 i\u00e7in kampanya ba\u015flat\u0131ld\u0131.<\/p>\n","protected":false},"author":1,"featured_media":74369,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[181,9144,1132,3663],"class_list":["post-74368","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","tag-hastalik","tag-ihtiyaci","tag-ilaci","tag-tedavisi"],"_links":{"self":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/74368","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=74368"}],"version-history":[{"count":1,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/74368\/revisions"}],"predecessor-version":[{"id":74370,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/posts\/74368\/revisions\/74370"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=\/wp\/v2\/media\/74369"}],"wp:attachment":[{"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=74368"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=74368"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/haberulus.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=74368"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}